Sunday, 30 August 2015

There's a reason why 'Sober' and 'So Bored' sound almost exactly the same.

One of the massive downsides of being a young person with arthritis is the fact that you can't drink spirits or get drunk thanks to everyone's best friend methotrexate.

Unfortunately, Leo is correct. Methotrexate is an aggressive drug used to treat some types of arthritis as well being used on those with leukaemia and other forms of cancer. It is knows as a DMARD, a disease-modifying anti- rheumatic drug. It dampens down the underlying disease process rather than just treating symptoms. However, methotrexate also reduces the activity of your immune system (your body’s defence system).The drug interferes with the growth of certain cells of the body, especially cells that reproduce quickly, such as cancer cells, bone marrow cells, and skin cells. It can lower blood cells that help your body fight infections and help your blood to clot. You may get an infection or bleed more easily. The reason you cannot drink spirits on the drug or drink excessively is because when the drug mixes with alcohol it can cause me to become jaundice and go into liver failure, to be honest I will give up the sauce if it means avoiding becoming the new character on The Simpsons.
I started taking methotrexate last week and today is my second dose and it will take months for me to see the benefits. On Wednesday it was my friend's 20th Birthday where she chose to have a 20 bar crawl which was pretty ambitious, even for my herd of alcoholics! My first time out not drinking and I knew it was going to be hard. It was actually fine, I  had as much fun as my other friends, still stayed out till 3 and didn't have a crazy hangover like the birthday girl. The only part I was pissed about was everyone constantly asking why I wasn't drinking and I hadn't really told anyone about being ill other than my family and close friends, and I'm not one to share personal details about myself with anyone let alone complete strangers.So I just kept saying that I was on medication, to which the response was usually 'Aw fuck that! I drink when I'm on antibiotics all the time'. No. That is not the same thing! There was one guy when we were at the club who had been drooling over my friend all night, constantly coming up to her telling her she looked like Kendal Jenner, of course a very flattering comment at first, but this swiftly became tiresome. Later on he came over with a drink that he claimed to have got me. I wouldn't have taken it anyway cause as a rule of thumb I don't accept drink that I haven't seen poured especially from a slimy douche goblin. When I politely said no and explained that I was on medications, he said 'What the fuck is wrong with you just accept the drink, Jesus'. I have only been on this medication for a week and already I am sick of having to explain myself.
Looking onward to bigger and better things, in a couple of days I'm off to Dublin for a well needed break from everything. At the end of the day it is important not to care about what others think.
A lion does not concern itself with the opinions of sheep.


Monday, 24 August 2015

Here Goes...

Writing this is a lot harder than I thought it was going to be but I think that it is something that I need to do. Whenever I heard the word 'Arthritis' I associated it with the golden oldie generation. I thought that it was what happened when some people got old and their bones started to turn to shit.
So, to be told when you are 19 that you have arthritis and realise that you have had it for a few years undiagnosed it comes as a shock.
I have been self conscious about my hands ever since I can remember, my fingers have always been a bit sausage-esque and swollen and I hated my rashes I would get but I was always told was just eczema. I would constantly go to the doctors to ask for help and I was met with various creams ranging from moisturisers to that of steroid. When it came to my swollen fingers I was told to lose weight and drink more water and then it would go away but it was only when I found I had constant chronic pain in my hands and feet that I was taken seriously.
I'm still not sure exactly why I have decided to write this blog and what its purpose will be, that is something which I assume will become clear as I write. I guess  no matter how angry and upset I am about being ill, I am so happy that I pushed to find out what was wrong instead of sitting around and ignoring the problem and potentially leaving my hands to become so mangled that I would struggle to use them. I guess making young people more aware of arthritis and that it can affect anyone is the aim. To be honest I think it will make the whole process easier for me if I have this outlet and can talk to those who are going through the same thing.
The whole process can be terrifying in the space of less than a month I went from being a normal 19 year old to being poked and prodded having shit loads of information unloaded onto me, with a very short amount of time to process it. A month bombarded with MRI scans, feet hands and chest x-rays, blood tests every two weeks and various immunisations to stop me from getting ill.
If anyone is reading this and finds themselves in the same position as me and wants someone to talk to feel free to contact me or look at the list of various websites and groups that I put links up to that I have found useful.
I am still getting used to using this and working out what I am going to do but I will try and post as much as I  can, as often as I can about what is going on and the various trials and tribulations of living inside a body which is attacking itself.